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GROUPS Spina Bifida Association of America. 4590 MacArthur Blvd. NW, Suite 250, Washington, D.C. 20007-4226. Voice (202) 944-3285. Fax (202) 944-3295. The mission of the Spina Bifida Association of America is to promote the prevention of spina bifida and to enhance the lives of all affected. The association was founded in 1973 to address the specific needs of the spina bifida community and serves as the national representative of over 70 chapters. http://www.sbaa.org Spina Bifida Association of North Carolina. 5632 Ebley Lane, Charlotte, N.C. 28227. (800) 847-2262. This is the state chapter, with links to local contacts and support groups.sbanc.home.mindspring.com National Council on Folic Acid. The council's goal is to substantially increase the proportion of women who consume 400 micrograms of folic acid daily as a means of preventing spina bifida. http://www.modimes.org/Programs2/FolicAcid/Mission.htm International Federation for Hydrocephalus and Spina Bifida. Cellebroerstraat 16, B-1000 Brussels, Belgium. The goal of the federation is to disseminate information and expertise throughout the world to families, individuals, professionals and volunteers involved in the hydrocephalus and spina bifida field. PUBLICATIONS Folic Acid Publications. The Center for Disease Control and Prevention has compiled governmental documents covering folic acid. www2.cdc.gov/nceh/folic_order/ orderform.htm ONLINE Latest findings in folic acid research. The March of Dimes has gathered information, mainly targeted to health care professionals, on the latest discoveries dealing with folic acid use. The information is online and can be accessed at: http://www.modimes.org/Programs2/FolicAcid/Health_Professionals.htm SpinaBifida.net. This site is a compilation of free information on the disease. There are links to support groups, family Web pages, treatment centers and an extensive publication list. http://www.spinabifida.net/ Fetal Diagnosis and Therapy at Vanderbilt University Medical Center. This unit of the medical center at Vanderbilt provides comprehensive care to women carrying fetuses with known or suspected birth defects. They use a multidisciplinary approach that enables them to draw upon the full resources of the university in reaching a diagnosis of the problem and methods of management that best meets the needs of both baby and mother. http://www.fetalsurgeons.com/
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